Case No. 2023: Muhammad Abdul Raiyan Jakir Hussan was once the brightest sunshine in his family — cheerful, adorable, and always smiling. But at just one year and three months old, his life took a drastic turn after a sudden high fever. Despite being taken to a clinic and given medication, his condition did not improve. Eventually, his parents rushed him to the hospital. While waiting in line for treatment, he began having seizures, clearly indicating a serious condition.
He was later diagnosed with Acute Necrotizing Encephalopathy of Childhood and was immediately admitted to the Intensive Care Unit (ICU) for emergency treatment.
[He Cannot Open His Eyes]
During treatment, he developed severe eye complications. Although there has been some relief, opening his eyes still causes redness and full-body convulsions. Doctors had no choice but to recommend taping his eyelids shut to prevent potentially life-threatening consequences. He also suffers from severe hearing loss and is entirely dependent on others for daily care.
[His Body Is Still Fighting]
Muhammad Abdul Raiyan has received initial treatment, but his recovery is poor. Though he can breathe on his own, he remains in a coma. He suffers from extensive brain bleeding and severe neurological damage, along with frequent myoclonic seizures. He can only be fed through a nasogastric tube.
Doctors strongly recommend immediate genetic testing to identify the root cause of his illness and begin targeted treatment. Without it, he may never wake up — and could remain in a vegetative state indefinitely.
[A Heartbreaking Family Situation]
He is the youngest child in the family. His father, Jakir Hussan Bin Nazir Ahmad (37 years old), is a labourer doing odd jobs with an unstable income. His mother, Rahena Binti Abdul Koyon (34 years old), is a housewife with frail health who is unable to work.
Muhammad Abdul Raiyan had an older sister and had a second brother who tragically passed away at just one month old. This family has already endured immense hardship.
In utter desperation, the parents turned to us for help. As this specific genetic test is not available in Malaysia, it must be processed in South Korea. The cost is USD 350 (approximately RM1,549 at the current exchange rate), which the family cannot afford. After learning about their plight, we decided to launch a fundraising campaign for this poor little boy and are now seeking the generosity of the public to support him through this crisis.
[Please Help Him Wake Up and See This Beautiful World]
The parents are at the end of their rope. Their only hope now is to give their son a chance to “wake up.”
Even the smallest act of kindness can come together to create a powerful force of hope. We sincerely ask for your help for this innocent child. Please also share this message so that more kind individuals may come forward to lend a hand. Thank you.
They rely solely on the father’s meagre and unstable earnings to survive. The family was already in financial distress and now cannot afford the cost of the genetic test. Here are the crowdfunding details:
Genetic testing fee：RM1,549
Dutch lady mik powder (4-6 years old)：RM1,104（RM23 x 48 cans per year）
Drypers XXL ：RM1,152 per year（ RM32 x 36 packs per year）
Total : RM3,805
[Please Help Him Wake Up and See This Beautiful World]
The parents are at the end of their rope. Their only hope now is to give their son a chance to “wake up.”
Even the smallest act of kindness can come together to create a powerful force of hope. We sincerely ask for your help for this innocent child. Please also share this message so that more kind individuals may come forward to lend a hand. Thank you.
